Discover our comprehensive methodology for providing support, education, and advocacy for individuals and families affected by sickle cell disease.
Learn About Our ProcessWe follow a structured approach to ensure we provide comprehensive support to the sickle cell community.
We begin by understanding the unique needs and challenges of each individual or family affected by sickle cell disease.
We provide essential information and connect individuals with appropriate resources.
We actively work with individuals and families to implement their personalized support plans.
We advocate for our community and work to build supportive networks.
We regularly assess our programs and services to ensure they effectively meet community needs.
We utilize multiple strategies to address the diverse needs of the sickle cell community.
Connecting patients with specialized healthcare providers, facilitating access to treatments, and providing medical information to help manage the condition effectively.
Offering counseling services, support groups, and peer mentoring to address the psychological and emotional challenges of living with sickle cell disease.
Providing comprehensive education about sickle cell disease to patients, families, schools, and the broader community to reduce stigma and increase understanding.
Helping with practical needs such as transportation to medical appointments, assistance with insurance paperwork, and connecting families with financial resources.
Working to influence policy, increase research funding, and improve access to care and treatment options for the sickle cell community.
Creating opportunities for connection through events, support groups, and online platforms to reduce isolation and build a strong support network.
Through our dedicated work, we've made a meaningful difference in the lives of those affected by sickle cell disease.
Find answers to common questions about how we operate and support the sickle cell community.
You can contact us through our website, by phone, or by visiting our office. We'll schedule an initial assessment to understand your needs and determine how we can best support you.
Yes, all our core services are provided free of charge to individuals and families affected by sickle cell disease. We're funded through grants, donations, and community support.
While we don't provide direct medical treatment, we connect individuals with appropriate healthcare providers, help navigate treatment options, and provide education about managing the condition.
We welcome volunteers in various capacities. You can fill out our volunteer application on our website, attend one of our volunteer orientation sessions, or contact our volunteer coordinator directly.
Absolutely. We recognize that sickle cell disease affects entire families. We offer support groups, counseling, and educational resources specifically designed for parents, siblings, and other family members.
Whether you need support, want to volunteer, or are interested in partnering with us, we'd love to connect with you.
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